Sickle cell disease is not just a medical condition; it is a public health challenge that requires many voices and many hands working together. From patients and families to hospitals, laboratories, researchers, and government leaders, coordination is the thread that ties our work together.

At the Muhimbili Sickle Cell Programme in Tanzania, this approach has been proven to work. Over the past decade, more than 5,000 patients were enrolled in one of the largest sickle cell cohorts in Africa, with data linking clinical care, laboratory services, and research. This was possible only because systems of communication, referral, and data sharing were actively built and maintained.

We are carrying that spirit of collaboration forward. Our programme convenes regular forums where stakeholders share knowledge, align priorities, and address gaps. Through standardized referral pathways, patients can move from community clinics to specialized care without falling through the cracks. Shared patient identifiers and data systems allow information to follow the patient, ensuring continuity of care.

Coordination also means resource mobilization. By mapping available resources—medicines, laboratories, trained staff—and aligning donor and government investments, we prevent duplication and direct efforts where they are needed most. This integrated model not only strengthens the health system but also improves patient outcomes, creating a stronger support system for families living with sickle cell disease.

👉 Call to Action: Join our network of partners and help us strengthen the system that supports every patient.